Iftar with a changed appetite

Started 10 February 2026 · 17 replies · 136 hearts · read 1.7k times

OttiHarrogate, UK · 10 February 2026

5 months ago

A question rather than an update: Iftar with a changed appetite

The logistics of this are defeating me more than the medicine is.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

NolCork, IE

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5me too 3

NoorFacilitatorSingapore

Reading the opening post, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

WystanCheltenham, UK

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

AmbroseYork, UK

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

KateBelfast, NI

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

TavitaApia, WS

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

NkosiJohannesburg, ZA

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

OsgarKillarney, IE

Building on what the reply above wrote rather than answering the original question.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

Bell ANorwich, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

DelphiThessaloniki, GR

#10

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

GwilymCaernarfon, UK

#11

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

WinkleWeymouth, UK

#12

I did exactly the same and felt terrible about it. You have not done anything wrong.

GildaTrieste, IT

#13

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9me too 7

OttiHarrogate, UK

#14

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

NolCork, IE

#15

What helped was lowering my own expectations of the week rather than trying to hold the week together.

NoorFacilitatorSingapore

#16

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

WystanCheltenham, UK

#17

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.