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Being the one who does not drink or eat much any more

Started 27 July 2025 · 20 replies · 189 hearts · read 1.5k times

AmbroseYork, UK · 27 July 2025
12 months ago

Something I have been sitting with: Being the one who does not drink or eat much any more Not looking for advice so much as other people's experience.

Practical question, and possibly a silly one.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

Thanks all. Genuinely.

63

OsgarKillarney, IE
#1

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

WystanCheltenham, UK
#2

Reading the opening post, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

Bell ANorwich, UK
#3

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

7me too 7

NoorFacilitatorSingapore
#4

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

9

GwilymCaernarfon, UK
#5

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

NolCork, IE
#6

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

12

OttiHarrogate, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9

WinkleWeymouth, UK
#8

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10me too 1

GildaTrieste, IT
#9

the reply above said something I want to sit with for a second.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8

DelphiThessaloniki, GR
#10

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

12

PerryCardigan, UK
#11

Yes to the burping. It is real, it is unbeautiful, and it does settle.

8

KateBelfast, NI
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

NkosiJohannesburg, ZA
#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9me too 1

AmbroseYork, UK
#14

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

OsgarKillarney, IE
#15

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

7

WystanCheltenham, UK
#16

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

Bell ANorwich, UK
#17

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

TavitaApia, WS
#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12me too 6

NoorFacilitatorSingapore
#19

What the reply above described happened to me too, in a slightly different order.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

12

NolCork, IE
#20

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7me too 5