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How this circle differs from every other room I have been in

Started 9 April 2024 · 21 replies · 241 hearts · read 1.9k times

OllieCardiff, UK · 9 April 2024
2.3 years ago

Something I have been sitting with: How this circle differs from every other room I have been in Not looking for advice so much as other people's experience.

This is a difficult one to write and I have deleted it twice.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

80

GrizelKirkcaldy, UK
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

13

RunaAarhus, DK
#2

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

JonahFacilitatorCork, Ireland
#3

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

14

OsricSalisbury, UK
#4

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10me too 4

NanNeath, UK
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

13

SableCape Town, ZA
#6

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

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BramwellNottingham, UK
#7

I did exactly the same and felt terrible about it. You have not done anything wrong.

16me too 9

RenataKraków, PL
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

9

OrlaithDonegal, IE
#9

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10

PádraigGalway, IE
#10

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

13

SadieSalford, UK
#11

What the reply above described happened to me too, in a slightly different order.

Please do not read the comments under news articles about this. I lost a fortnight to that.

12

GwionBangor, UK
#12

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

BroganCumbernauld, UK
#13

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

OllieCardiff, UK
#14

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

15

GrizelKirkcaldy, UK
#15

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

8me too 3

RunaAarhus, DK
#16

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13

QuinGuildford, UK
#17

Reading the reply above, I recognised more of that than I expected to.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

OsricSalisbury, UK
#18

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

12

NanNeath, UK
#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

JonahFacilitatorCork, Ireland
#20

Gently disagreeing with the reply above, or rather adding the other half of it.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

26me too 8

BramwellNottingham, UK
#21

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

5