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Maintenance

Do you still journal in maintenance

Started 29 July 2025 · 20 replies · 189 hearts · read 2.3k times

FabianBasel, CH · 29 July 2025
12 months ago

Do you still journal in maintenance — putting it in its own thread so it does not get lost in the check-in.

Writing this partly to ask and partly because writing it down usually tells me what I think.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

63

NilsUppsala, SE
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

WellsChester, UK
#2

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11

BenediktFacilitatorVienna, Austria
#3

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

10

NualaArmagh, NI
#4

Please do not read the comments under news articles about this. I lost a fortnight to that.

8me too 6

OttaviaBologna, IT
#5

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12

TychoLeiden, NL
#6

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

6

MaudGhent, BE
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11me too 1

PipBristol, UK
#8

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

Bryn MNeath, UK
#9

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

10

BarnabyWinchester, UK
#10

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7me too 5

TorinBelfast, NI
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

6me too 5

LinneaTurku, FI
#12

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

DevManchester, UK
#13

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

8

PerdyShrewsbury, UK
#14

Building on what the reply above wrote rather than answering the original question.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

MoBradford, UK
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

RomyVienna, AT
#16

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12me too 3

PrueChester, UK
#17

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7

LeniLeipzig, DE
#18

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

BenediktFacilitatorVienna, Austria
#19

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

20

WilfStoke, UK
#20

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7