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Maintenance

Holidays in maintenance are just holidays now

Started 24 August 2024 · 20 replies · 228 hearts · read 2.6k times

RomyVienna, AT · 24 August 2024
1.9 years ago

Starting a thread on this because it keeps coming up in ones and twos: Holidays in maintenance are just holidays now

I do not know if this belongs in this circle. Move me if not.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Not looking for a plan. Just company and whatever anyone has found.

76

EdwynNewcastle, UK
#1

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

6me too 8

BenediktFacilitatorVienna, Austria
#2

What the opening post described happened to me too, in a slightly different order.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

25

EsmeAix-en-Provence, FR
#3

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8

TychoLeiden, NL
#4

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10

CassWakefield, UK
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11

GethinMerthyr Tydfil, UK
#6

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13me too 3

PrueChester, UK
#7

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

PerryCardigan, UK
#8

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

RowanInverness, UK
#9

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

14

Ozzy GWalsall, UK
#10

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

FlossieShrewsbury, UK
#11

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

14

TeganNewport, UK
#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

BelCroydon, UK
#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

BobbieRochdale, UK
#14

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

TressaSt Austell, UK
#15

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

13

SadieSalford, UK
#16

Gently disagreeing with the reply above, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

ZenBristol, UK
#17

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

GusStirling, UK
#18

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8me too 6

BenediktFacilitatorVienna, Austria
#19

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

17

RinManchester, UK
#20

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12