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Splitting the difference — what my prescriber offered instead

Started 4 December 2024 · 19 replies · 211 hearts · read 3.2k times

HalCambridge, UK · 4 December 2024
1.6 years ago

Starting a thread on this because it keeps coming up in ones and twos: Splitting the difference — what my prescriber offered instead

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

70

GwendaEbbw Vale, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

7

TomásFacilitatorLisbon, Portugal
#2

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

23me too 1

DoraUtrecht, NL
#3

Reading the opening post, I recognised more of that than I expected to.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

8

BrammyBelfast, NI
#4

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

BevanSwansea, UK
#5

Reading the reply above, I recognised more of that than I expected to.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

12

GwynethAberdare, UK
#6

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

10

FlorrieBlackburn, UK
#7

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

11

IdrisCardiff, UK
#8

the reply above — yes, and the bit that took me longest to accept was the next part.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

9

BroganCumbernauld, UK
#9

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

14

HeddaCopenhagen, DK
#10

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

7

HalCambridge, UK
#11

Please do not read the comments under news articles about this. I lost a fortnight to that.

12

GwendaEbbw Vale, UK
#12

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8me too 3

GwennoPwllheli, UK
#13

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

DoraUtrecht, NL
#14

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

BrammyBelfast, NI
#15

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 8

BevanSwansea, UK
#16

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

15

GwynethAberdare, UK
#17

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

IdrisCardiff, UK
#19

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

8