A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Slow titrators

My insurer wants a faster schedule than my body does

Started 4 December 2024 · 20 replies · 216 hearts · read 3.3k times

FlorrieBlackburn, UK · 4 December 2024
1.6 years ago

Something I have been sitting with: My insurer wants a faster schedule than my body does Not looking for advice so much as other people's experience.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

72

DoraUtrecht, NL
#1

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12

TomásFacilitatorLisbon, Portugal
#2

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

19me too 4

BroganCumbernauld, UK
#3

What the opening post described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

HalCambridge, UK
#4

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

HeddaCopenhagen, DK
#5

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11

IdrisCardiff, UK
#6

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6

GwennoPwllheli, UK
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

BrammyBelfast, NI
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

GwynethAberdare, UK
#9

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

GwendaEbbw Vale, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6

FlorrieBlackburn, UK
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

DoraUtrecht, NL
#12

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

BevanSwansea, UK
#13

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

13

BroganCumbernauld, UK
#14

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9me too 2

HalCambridge, UK
#15

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

11

HeddaCopenhagen, DK
#16

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13

IdrisCardiff, UK
#17

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10me too 7

GwennoPwllheli, UK
#18

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

15

TomásFacilitatorLisbon, Portugal
#19

Gently disagreeing with the reply above, or rather adding the other half of it.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

20

GwynethAberdare, UK
#20

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

13