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Slow titrators

When to hold and when to move — how do you decide with your clinician

Started 17 October 2024 · 15 replies · 169 hearts · read 3.1k times

BevanSwansea, UK · 17 October 2024
1.8 years ago

When to hold and when to move — how do you decide with your clinician — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

The thing that has surprised me most is how much of this is about other people rather than about me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

56

FlorrieBlackburn, UK
#1

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

14

GwennoPwllheli, UK
#2

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

TomásFacilitatorLisbon, Portugal
#3

What the opening post described happened to me too, in a slightly different order.

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

25me too 5

HalCambridge, UK
#4

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

BroganCumbernauld, UK
#5

Yes to the burping. It is real, it is unbeautiful, and it does settle.

8

BrammyBelfast, NI
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

13

IdrisCardiff, UK
#7

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

6

DoraUtrecht, NL
#8

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10

GwynethAberdare, UK
#9

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9me too 8

GwendaEbbw Vale, UK
#10

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

BevanSwansea, UK
#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

15

FlorrieBlackburn, UK
#12

Reading the reply above, I recognised more of that than I expected to.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

8

GwennoPwllheli, UK
#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

11me too 9

HalCambridge, UK
#15

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

7