A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Slow titrators

Watching everyone else move up while I stay put

Started 23 September 2024 · 16 replies · 185 hearts · read 3.7k times

GwendaEbbw Vale, UK · 23 September 2024
1.8 years ago

Starting a thread on this because it keeps coming up in ones and twos: Watching everyone else move up while I stay put

I do not know if this belongs in this circle. Move me if not.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

62

HeddaCopenhagen, DK
#1

I did exactly the same and felt terrible about it. You have not done anything wrong.

6

BrammyBelfast, NI
#2

Reading the opening post, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

13

TomásFacilitatorLisbon, Portugal
#3

the reply above — yes, and the bit that took me longest to accept was the next part.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

15

IdrisCardiff, UK
#4

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

10me too 8

DoraUtrecht, NL
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11me too 7

GwennoPwllheli, UK
#6

What helped was lowering my own expectations of the week rather than trying to hold the week together.

14

GwynethAberdare, UK
#7

Please do not read the comments under news articles about this. I lost a fortnight to that.

9

BevanSwansea, UK
#8

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

11

HalCambridge, UK
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

10

BroganCumbernauld, UK
#10

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12me too 2

GwendaEbbw Vale, UK
#11

Reading the reply above, I recognised more of that than I expected to.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

13

HeddaCopenhagen, DK
#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10

BrammyBelfast, NI
#13

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

9

FlorrieBlackburn, UK
#14

the reply above said something I want to sit with for a second.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

DoraUtrecht, NL
#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

10