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6.7k entries from 153 people. Page 154 of 279.

  • Beginning, badly

    Soraya1 Mar 2025hopeful energy 2

    A quiet week. The leaflet is nine pages and about seven of them are worst cases. I have read it three times, which was three times too many, and I am now going to…

  • A printout I cannot read

    Toby1 Mar 2025brisk energy 3

    Quickly, before bed. Took the diary in. She read it properly, which I had not expected, and changed the plan because of it. Left with a printout I could not read and…

  • Awake at four

    Tulla1 Mar 2025rested energy 5

    This week: Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. Repeat study came back…

  • Steady

    Bridie28 Feb 2025steady energy 1

    This week: Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. I nearly did not write this week because there was nothing in it.…

  • A printout I cannot read

    Brody28 Feb 2025frustrated energy 2

    A locum who had clearly read nothing. I was polite, I got what I needed, and I have booked with my own GP for next month. She reduced one of my other medications. I…

  • Paired

    Dilly28 Feb 2025held energy 1

    Nobody has ever asked me how I was doing on a Wednesday before. She had a bad week and I had a fine one, and next month it will be the other way round. That is the…

  • Both bags, one go

    Florrie28 Feb 2025quietly delighted energy 1

    Walked into town and back, which I stopped doing years ago without ever deciding to stop. Got down on the floor and back up again unaided. I have not been able to do…

  • Steady

    Gavin28 Feb 2025steady energy 4

    Steady. That is the whole entry. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. Cheers.

  • Quiet

    Gwenda28 Feb 2025steady energy 3

    Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly did not…

  • She stopped the room

    Lark28 Feb 2025warm energy 2

    Sitting down to this properly tonight. Somebody new tonight, terrified, exactly where I was in the spring. I said the thing that had been said to me and watched it…

  • Propped up on pillows

    Maeve28 Feb 2025sore energy 3

    Right. Very tired. Not the kind of tired a nap fixes. I slept nine hours and woke feeling as though I had been awake all night. The nausea has a shape to it now.…

  • My mother cooks

    Mo28 Feb 2025warm energy 1

    Three things this week. Starters as a main course, permanently. No explanation offered, none requested. My mother cooks. That is how she says it. So I eat what I can,…

  • Two flights of stairs

    Sara28 Feb 2025grateful energy 5

    Sat on the floor and played for an hour, and then got up. That was the entire reason I started, and I have now done it. Carried both bags up in one go. Small thing.…

  • Grip

    Sorrel28 Feb 2025tired but good energy 5

    Eight minutes and a chair. That is the whole programme. Tuesday and Friday. I have done it for eleven weeks. Grip strength has gone off and I noticed it opening a jar…

  • Starters as a main

    Anna27 Feb 2025awkward energy 1

    A brief account of the week. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word.…

  • A different shape

    Rowan27 Feb 2025foggy energy 5

    Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off. Two other people…

  • A wedding

    Annika27 Feb 2025loved energy 5

    A quiet week. Starters as a main course, permanently. No explanation offered, none requested. A wedding. Three courses I could not face, a table of people who…

  • Somebody new

    Ashwin27 Feb 2025warm energy 1

    Circle tonight. Eight of us, an hour, and about eleven minutes of actual information. The rest was the point. Went for the practical answers and stayed for the…

  • Off the floor

    Bay27 Feb 2025grateful energy 3

    Got down on the floor and back up again unaided. I have not been able to do that since 2021 and I did it twice more just to check. Tied my own laces standing up. I am…

  • A new bin and a plan

    Birdie27 Feb 2025organised energy 5

    Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months. Small logistics win:…

  • Starters as a main

    Bruno27 Feb 2025awkward energy 3

    My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. Starters as a main…

  • Starters as a main

    Calla27 Feb 2025loved energy 5

    Short one tonight. Sunday lunch at my grandmother's. Small plate, long afternoon, no drama, and she was happy. My mother cooks. That is how she says it. So I eat what…

  • Off the floor

    Gus27 Feb 2025pleased energy 1

    A gentle week, mostly. Slept flat. Whole night. Flat. Carried both bags up in one go. Small thing. Wrote it down. Sat on the floor and played for an hour, and then…

  • No news

    Hannah27 Feb 2025flat energy 4

    Short one tonight. Steady. That is the whole entry. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. No news. The dog…