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Journals

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6.7k entries from 153 people. Page 175 of 279.

  • Three cool bags and a thermometer

    Hedda27 Jan 2025organised energy 4

    Batch cooked on a good day for the bad days. Six labelled boxes in the freezer and a great deal of smugness. Tested three cool bags against a thermometer this weekend…

  • Beginning, badly

    Obi27 Jan 2025wired energy 1turning point

    Notes for the week. I want to write this down before I forget how frightened I was, because I suspect in three months I will not believe it. Twenty minutes of…

  • She stopped the room

    Ravi27 Jan 2025warm energy 4

    Notes for the week. The facilitator stopped the room when four of us were talking at once and asked one person how she was actually doing. It changed the whole hour.…

  • Slept through

    Ruthie27 Jan 2025tired energy 4

    A brief account of the week. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Slept through. Whole…

  • Dreams

    Tam27 Jan 2025foggy energy 3

    Three things this week. The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Slept through. Whole night, no…

  • How are you doing on a Wednesday

    Tinuke27 Jan 2025held energy 2

    Nobody has ever asked me how I was doing on a Wednesday before. My buddy noticed something in my journal before I did and asked me a very gentle question about it.…

  • Paired

    Yannick27 Jan 2025held energy 4

    Notes for the week. Nobody has ever asked me how I was doing on a Wednesday before. Paired up. We text on Sunday nights, four or five lines each, and it has quietly…

  • A wedding

    Anna26 Jan 2025warm energy 5

    A brief account of the week. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word.…

  • Walking

    Ammi26 Jan 2025tired but good energy 1

    Late, and writing anyway. Walked instead of the bus all week. Not a programme. Just walking. Eight minutes and a chair. That is the whole programme. Tuesday and…

  • Dreams

    Dot26 Jan 2025tired energy 3

    Well then. Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. The sleep has changed…

  • Three years side by side

    Duncan26 Jan 2025pleased energy 3

    Three things this week. Everything stable. She said come back in a year. I have never had a come-back-in-a-year before. Iron and B12 both low. Treated. The difference…

  • Awake at four

    Gigi26 Jan 2025foggy energy 3

    The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Repeat study came back and the apnoea is much reduced.…

  • A different shape

    Holly26 Jan 2025tired energy 1

    A quiet week. Waking at four again. Not anxious, just awake, lying there listening to the boiler. Slept through. Whole night, no waking. It has been so long that I…

  • No news

    Ives26 Jan 2025fine energy 3

    Steady. That is the whole entry. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Out at four.

  • Awake at four

    Mo26 Jan 2025rested energy 2

    Three things this week. Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and…

  • Beginning, badly

    Ossian26 Jan 2025wired energy 3

    Late, and writing anyway. Nothing has happened yet, which nobody had warned me about. I think I expected to feel something immediately, and instead I made a cup of…

  • An unremarkable week

    Peggy26 Jan 2025fine energy 2

    An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then…

  • Six labelled boxes

    Toby26 Jan 2025pleased energy 4

    Batch cooked on a good day for the bad days. Six labelled boxes in the freezer and a great deal of smugness. New sharps bin, and a plan for what happens to it when I…

  • The pattern of it

    Tulla26 Jan 2025flat energy 3

    This week: The burping. Nobody mentions the burping. It is not in any leaflet and it is genuinely one of the odder experiences of my adult life. Very tired. Not the…

  • No news

    Lena25 Jan 2025steady energy 3

    Recording this for the record. Steady. That is the whole entry. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks…

  • Somebody new

    Bay25 Jan 2025warm energy 1

    Went for the practical answers and stayed for the company, which I gather is what everybody does. Somebody new tonight, terrified, exactly where I was in the spring.…

  • Somebody new

    Bo25 Jan 2025warm energy 1

    A quiet week. Went for the practical answers and stayed for the company, which I gather is what everybody does. Somebody new tonight, terrified, exactly where I was…

  • Three cool bags and a thermometer

    Brody25 Jan 2025organised energy 2

    This week: Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice changed a clinical decision. Anchored injection day to my…

  • Circle tonight

    Bruno25 Jan 2025warm energy 4

    Circle tonight. Eight of us, an hour, and about eleven minutes of actual information. The rest was the point. The facilitator stopped the room when four of us were…