Journal
Maryam’s journal
Injection Sunday. Reflux Monday. Fine by Wednesday.
Stayed for the company
week 22warm energy 14 replies
The facilitator stopped the room when four of us were talking at once and asked one person how she was actually doing. It changed the whole hour. Became the person who…
She reduced it
week 22brisk energy 1
Notes for the week. A locum who had clearly read nothing. I was polite, I got what I needed, and I have booked with my own GP for next month. Left with a printout I could not…
A different shape
week 21rested energy 34 replies
Notes for the week. Waking at four again. Not anxious, just awake, lying there listening to the boiler. Vivid dreams, every night, the sort you have to sit up and shake off.…
Steady
week 20fine energy 21 reply
No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. I nearly did not write this week because…
Awake at four
week 19foggy energy 54 replies
Recording this for the record. Waking at four again. Not anxious, just awake, lying there listening to the boiler. Vivid dreams, every night, the sort you have to sit up and…
Starters as a main
week 18loved energy 41 reply
Notes for the week. Somebody asked what my secret was and I froze completely. Still working out what I want to say to that. My mother cooks. That is how she says it. So I eat…
A locum
week 18frustrated energy 4
Recording this for the record. Left with a printout I could not read and no idea what to be worried about. Taking it to bloodwork-buddies on Thursday. She reduced one of my…
Back without making it up
week 17tired but good energy 32 replies
Recording this for the record. Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Came back after a bad…
Quiet
week 16fine energy 41 reply
Recording this for the record. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks.…
Steady
week 15steady energy 23 replies
Recording this for the record. Steady. That is the whole entry. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give…
Off the floor
week 14grateful energy 41 reply
Notes for the week. Got down on the floor and back up again unaided. I have not been able to do that since 2021 and I did it twice more just to check. Swam. First time since…
Quiet
week 13fine energy 51 reply
Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. An unremarkable week.…
Two lines a day
week 12organised energy 42 replies
Recording this for the record. Tested three cool bags against a thermometer this weekend because I am that person. Results written up for the travel circle. Batch cooked on a…
Steady
week 11steady energy 53 replies
Notes for the week. An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Quiet. Injection Tuesday, mild Wednesday, fine by…
Laces
week 10quietly delighted energy 21 reply
Full shift on my feet and my knees did not stop me. That has not happened in about four years. Walked into town and back, which I stopped doing years ago without ever…
Propped up on pillows
week 9sore energy 2
Notes for the week. Reflux again. I slept propped up on three pillows and woke at two anyway. I have an appointment on Thursday and I am going to actually mention it this…
Unpleasant, not dangerous
week 9sore energy 22 replies
Recording this for the record. Headache for three days running. It turned out I had barely drunk anything since Tuesday. Water, then a slow improvement, then feeling faintly…
A printout I cannot read
week 7frustrated energy 22 replies
She reduced one of my other medications. I asked her twice whether that was really allowed. A locum who had clearly read nothing. I was polite, I got what I needed, and I…
Sore and slow
week 7sore energy 5
Notes for the week. Reflux again. I slept propped up on three pillows and woke at two anyway. I have an appointment on Thursday and I am going to actually mention it this…
Grip
week 6tired but good energy 42 replies
Came back after a bad fortnight without trying to make up the lost ground, which is the thing that used to end it for me every time. Two sessions this week, both short, both…