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The mirror still shows me what it always showed me

Started 15 October 2025 · 18 replies · 142 hearts · read 1.6k times

LulaBournemouth, UK · 15 October 2025
9 months ago

Starting a thread on this because it keeps coming up in ones and twos: The mirror still shows me what it always showed me

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Not looking for a plan. Just company and whatever anyone has found.

47

RinManchester, UK
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

JonahFacilitatorCork, Ireland
#2

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

10

OrsolyaBudapest, HU
#3

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

8me too 4

ObieNashville, TN
#4

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

7

TavishIsle of Skye, UK
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

11

ZenBristol, UK
#6

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

MimiHong Kong
#7

Reading the reply above, I recognised more of that than I expected to.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

TiborBratislava, SK
#8

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8me too 9

NissaHaifa, IL
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10

EsmeAix-en-Provence, FR
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9

GwythFishguard, UK
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

4

GwilymCaernarfon, UK
#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7

ClémenceNantes, FR
#13

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

7

OsricSalisbury, UK
#14

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

8me too 8

DotFalmouth, UK
#15

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

5

LulaBournemouth, UK
#16

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

JonahFacilitatorCork, Ireland
#17

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

11me too 5

Obi OEnugu, NG
#18

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7