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When my appearance became a topic at work

Started 8 September 2024 · 24 replies · 268 hearts · read 5.2k times

ZenBristol, UK · 8 September 2024
1.9 years ago

Starting a thread on this because it keeps coming up in ones and twos: When my appearance became a topic at work

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

89

Obi OEnugu, NG
#1

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

OsricSalisbury, UK
#2

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

10

JonahFacilitatorCork, Ireland
#3

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

13

GwythFishguard, UK
#4

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

13

RinManchester, UK
#5

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9

TavishIsle of Skye, UK
#6

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

LulaBournemouth, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

GwilymCaernarfon, UK
#8

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12me too 5

EsmeAix-en-Provence, FR
#9

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

15

ObieNashville, TN
#10

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 8

MimiHong Kong
#11

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

14

DotFalmouth, UK
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12me too 5

NissaHaifa, IL
#13

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

16

TiborBratislava, SK
#14

the reply above said something I want to sit with for a second.

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

ClémenceNantes, FR
#15

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

6me too 9

ZenBristol, UK
#16

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12

Obi OEnugu, NG
#17

Building on what the reply above wrote rather than answering the original question.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

OsricSalisbury, UK
#18

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

OrsolyaBudapest, HU
#19

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

GwythFishguard, UK
#20

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

RinManchester, UK
#21

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

14me too 4

TavishIsle of Skye, UK
#22

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

8

JonahFacilitatorCork, Ireland
#23

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

15

GwilymCaernarfon, UK
#24

Building on what the reply above wrote rather than answering the original question.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12