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The language I have had to unlearn

Started 16 July 2024 · 23 replies · 263 hearts · read 2.1k times

ZenBristol, UK · 16 July 2024
2 years ago

The language I have had to unlearn Writing it down partly to work out what I actually think.

This is a difficult one to write and I have deleted it twice.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

The thing that has surprised me most is how much of this is about other people rather than about me.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

88

ClémenceNantes, FR
#1

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

14

JonahFacilitatorCork, Ireland
#2

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

15me too 3

OsricSalisbury, UK
#3

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

OrsolyaBudapest, HU
#4

Reading the reply above, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

5

RinManchester, UK
#5

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

13

TavishIsle of Skye, UK
#6

What the reply above described happened to me too, in a slightly different order.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

15

ObieNashville, TN
#7

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

14me too 1

MimiHong Kong
#8

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

Obi OEnugu, NG
#9

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6

NissaHaifa, IL
#10

What the reply above described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

9

EsmeAix-en-Provence, FR
#11

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

15me too 9

DotFalmouth, UK
#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

11

LulaBournemouth, UK
#13

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

GwythFishguard, UK
#14

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

TiborBratislava, SK
#15

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

14

ZenBristol, UK
#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6me too 5

ClémenceNantes, FR
#17

What the reply above described happened to me too, in a slightly different order.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

10

GwilymCaernarfon, UK
#18

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

OsricSalisbury, UK
#19

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6

OrsolyaBudapest, HU
#20

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

RinManchester, UK
#21

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11

JonahFacilitatorCork, Ireland
#22

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

27me too 8

ObieNashville, TN
#23

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

12