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When the noise goes quiet

The quiet is not the same as peace

Started 21 May 2026 · 11 replies · 70 hearts · read 919 times

TansyLudlow, UK · 21 May 2026
2 months ago

Something I have been sitting with: The quiet is not the same as peace Not looking for advice so much as other people's experience.

This is a difficult one to write and I have deleted it twice.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

23

BeaDublin, IE
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

2

IzzyWatford, UK
#2

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

MaeveSligo, IE
#3

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6me too 9

JonahFacilitatorCork, Ireland
#4

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

9

NadiaCairo, EG
#5

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

MaryamBirmingham, UK
#6

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

SorayaTehran, IR
#7

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

4

WinnieCarlisle, UK
#8

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5me too 4

OsgarKillarney, IE
#9

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5me too 3

JonahFacilitatorCork, Ireland
#10

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

12

BodhiByron Bay, AU
#11

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

4me too 1