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When the noise goes quiet

I filled the space with walking and then with reading

Started 2 September 2025 · 19 replies · 155 hearts · read 2.3k times

HannahSheffield, UK · 2 September 2025
11 months ago

I filled the space with walking and then with reading Writing it down partly to work out what I actually think.

I have been sitting on this for a month.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

52

SalmaManchester, UK
#1

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7me too 2

AnnaAthens, GR
#2

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

JonahFacilitatorCork, Ireland
#3

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

11

SaoirseKilkenny, IE
#4

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

NualaArmagh, NI
#5

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

BronwenBarry, UK
#6

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

RinManchester, UK
#7

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6

FreyaReykjavík, IS
#8

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

MaryamBirmingham, UK
#9

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

8

NadiaCairo, EG
#10

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

NyreeChristchurch, NZ
#11

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

4

BronteHaworth, UK
#12

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

OdileMontreal, CA
#13

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6me too 2

Ozzy GWalsall, UK
#14

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

MaritGroningen, NL
#15

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

BrammyBelfast, NI
#16

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8

MapleToronto, CA
#17

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

JonahFacilitatorCork, Ireland
#18

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

18

DillyNewport, UK
#19

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6