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Long covid and fatigue

Energy budgeting with a symptom I cannot predict

Started 13 November 2025 · 19 replies · 176 hearts · read 3.1k times

BrunoMilan, IT · 13 November 2025
8 months ago

Starting a thread on this because it keeps coming up in ones and twos: Energy budgeting with a symptom I cannot predict

Something is going on with my body and I would like to know whether it is ordinary.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

59

CassWakefield, UK
#1

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

12me too 9

PeronelCanterbury, UK
#3

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

10

PerlaManila, PH
#4

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8

SamPortland, OR
#5

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

LilPreston, UK
#6

the reply above — yes, and the bit that took me longest to accept was the next part.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5

BevanSwansea, UK
#7

Reading the reply above, I recognised more of that than I expected to.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

11me too 5

MairéadMayo, IE
#8

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

9

AshSunderland, UK
#9

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12

SolomonManchester, UK
#10

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

6

TobinCork, IE
#11

Gently disagreeing with the reply above, or rather adding the other half of it.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8

ClemmieNorwich, UK
#12

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

5

WinkleWeymouth, UK
#13

I did exactly the same and felt terrible about it. You have not done anything wrong.

10me too 3

TallisEly, UK
#14

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

MaeveSligo, IE
#15

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

8

PippaTruro, UK
#16

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9me too 5

BoazHaarlem, NL
#17

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

9

Reading the reply above, I recognised more of that than I expected to.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

21

NazneenDhaka, BD
#19

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

11