Body and symptoms
Long covid and fatigue
Pacing, energy budgets, and a very careful approach.
For members living with long covid, ME/CFS or another post-viral fatigue condition, everything about this needs more care. Energy is already budgeted. A fortnight of nausea is not an inconvenience, it is a crash risk. And the standard advice to move more can be actively harmful.
This circle is built around pacing rather than pushing, and around members' own specialist teams.
Who this circle is for
- You live with long covid, ME/CFS or post-viral fatigue
- You are worried about a crash while starting or stepping up
- You have found a pacing approach that survived a titration
Agreements here
- No graded exercise advocacy. Pacing is the frame here
- We plan around crashes rather than treating them as failures
What improved and what did not
Tallis13 replies
A question rather than an update: What improved and what did not Before anyone says it: yes, I have an appointment booked. I would still like to hear from people who have had this. Here is…
Some of my long covid symptoms are quieter and I do not trust it
Nadja8 replies
Belgrade. Reads everything twice, trusts nothing once, and I am about to be very careful for four paragraphs. I have had long covid since early 2022. The two symptoms that have shaped my…
Orthostatic symptoms and hydration
Sara16 replies
Orthostatic symptoms and hydration Writing it down partly to work out what I actually think. Before anyone says it: yes, I have an appointment booked. I would still like to hear from…
Two years of ME and six months of treatment
Hattie17 replies
Two years of ME and six months of treatment Writing it down partly to work out what I actually think. I have avoided asking about this for six weeks out of pure embarrassment. I have read…
Slowing the schedule right down with my prescriber
Tabby18 replies
Slowing the schedule right down with my prescriber Writing it down partly to work out what I actually think. I have avoided asking about this for six weeks out of pure embarrassment. I…
Energy budgeting with a symptom I cannot predict
Bruno19 replies
Starting a thread on this because it keeps coming up in ones and twos: Energy budgeting with a symptom I cannot predict Something is going on with my body and I would like to know whether…
A good week is a trap and I keep falling into it
Hattie8 replies
Exeter. Chronic fatigue plus this, careful pacing, and I want to talk about the thing that makes this circle different from the tiredness conversations elsewhere on the site.…
Starting while pacing — how I planned the first month
Duncan17 replies
Starting while pacing — how I planned the first month Writing it down partly to work out what I actually think. Squeamish subject, so I am going to be plain about it and get it over with.…
How I explained pacing to a well-meaning GP
Ronan18 replies
How I explained pacing to a well-meaning GP Writing it down partly to work out what I actually think. I have avoided asking about this for six weeks out of pure embarrassment. I have read…
Sleep that does not restore, plus a new sleep pattern
Solomon15 replies
Sleep that does not restore, plus a new sleep pattern Writing it down partly to work out what I actually think. Something is going on with my body and I would like to know whether it is…
The fortnight I lost and what I learned
Keeley19 replies
The fortnight I lost and what I learned Writing it down partly to work out what I actually think. Something is going on with my body and I would like to know whether it is ordinary. What I…
Eating enough on a bad week when cooking is impossible
Grover20 replies
Starting a thread on this because it keeps coming up in ones and twos: Eating enough on a bad week when cooking is impossible I have avoided asking about this for six weeks out of pure…
A crash after my second step up
Sam22 replies
A crash after my second step up Writing it down partly to work out what I actually think. Squeamish subject, so I am going to be plain about it and get it over with. What I would find most…
Batch cooking on good days for bad days
Winnie20 replies
Batch cooking on good days for bad days — putting it in its own thread so it does not get lost in the check-in. I have avoided asking about this for six weeks out of pure embarrassment. My…