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Therapy alongside this has been the useful part

Started 19 October 2024 · 18 replies · 207 hearts · read 3.8k times

KaiVancouver, CA · 19 October 2024
1.8 years ago

Starting a thread on this because it keeps coming up in ones and twos: Therapy alongside this has been the useful part

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

The thing that has surprised me most is how much of this is about other people rather than about me.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Sorry for the length. If anyone has been here, I would very much like to hear it.

69

IlyaAlmaty, KZ
#1

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13

JonahFacilitatorCork, Ireland
#2

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

21

CormacWaterford, IE
#3

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

12

MargueriteQuebec City, CA
#4

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

10me too 3

JontyOxford, UK
#5

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

7

SaoirseKilkenny, IE
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

BramwellNottingham, UK
#7

What the reply above described happened to me too, in a slightly different order.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

BessLouth, UK
#8

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

14

AikoOsaka, JP
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 1

BronteHaworth, UK
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12

LeifTrondheim, NO
#11

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

JunoBrighton, UK
#12

Reading the reply above, I recognised more of that than I expected to.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

FitzLimerick, IE
#13

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7me too 4

OssianTromsø, NO
#14

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

BryherIsles of Scilly, UK
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

I did exactly the same and felt terrible about it. You have not done anything wrong.

11

MairéadMayo, IE
#16

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6me too 6

JonahFacilitatorCork, Ireland
#17

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

28

MintaColchester, UK
#18

Please do not read the comments under news articles about this. I lost a fortnight to that.

8