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Sensory issues with the injection itself

Started 22 June 2026 · 11 replies · 63 hearts · read 801 times

TobiasHamburg, DE · 22 June 2026
4 weeks ago

A question rather than an update: Sensory issues with the injection itself

This is a difficult one to write and I have deleted it twice.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

21

AnnikaStockholm, SE
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

SoniaValencia, ES
#2

the opening post — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

LeifTrondheim, NO
#3

Reading the opening post, I recognised more of that than I expected to.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

KikiFacilitatorGlasgow, UK
#4

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

4me too 3

WilfStoke, UK
#5

What the reply above described happened to me too, in a slightly different order.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

6

Bryn MNeath, UK
#6

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

ObieNashville, TN
#7

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

4me too 7

TarqWindsor, UK
#8

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6

NixLeith, UK
#9

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

4me too 8

KikiFacilitatorGlasgow, UK
#10

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

6

EsmeAix-en-Provence, FR
#11

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

4