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ADHD medication, appetite and a routine in pieces

Started 15 May 2026 · 18 replies · 118 hearts · read 2.4k times

TacitaRome, IT · 15 May 2026
2 months ago

ADHD medication, appetite and a routine in pieces — putting it in its own thread so it does not get lost in the check-in.

I have been sitting on this for a month.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

39

GwilymCaernarfon, UK
#1

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

4

KikiFacilitatorGlasgow, UK
#2

the opening post said something I want to sit with for a second.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

12me too 7

SoniaValencia, ES
#3

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

5

EsmeAix-en-Provence, FR
#4

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

4

AnnikaStockholm, SE
#5

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

6

ObieNashville, TN
#6

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

LeifTrondheim, NO
#7

Building on what the reply above wrote rather than answering the original question.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

5

TobiasHamburg, DE
#8

I did exactly the same and felt terrible about it. You have not done anything wrong.

5

WilfStoke, UK
#9

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

7

Bryn MNeath, UK
#10

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

6

TarqWindsor, UK
#11

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

5me too 1

TacitaRome, IT
#12

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

GwilymCaernarfon, UK
#13

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

NixLeith, UK
#14

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

5

SoniaValencia, ES
#15

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

4

EsmeAix-en-Provence, FR
#16

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

KikiFacilitatorGlasgow, UK
#17

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

13

ObieNashville, TN
#18

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8me too 2