Injection day timing and sleep quality

Started 13 July 2024 · 19 replies · 228 hearts · read 4.7k times

OssianTromsø, NO · 13 July 2024

2 years ago

Injection day timing and sleep quality — putting it in its own thread so it does not get lost in the check-in.

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

HollisBath, UK

Please do not read the comments under news articles about this. I lost a fortnight to that.

SamPortland, OR

What the opening post described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

KikiFacilitatorGlasgow, UK

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

BassCoventry, UK

What helped was lowering my own expectations of the week rather than trying to hold the week together.

PeggyRotherham, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

RufusGuildford, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

MarenBremen, DE

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

RunaAarhus, DK

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 7

NilsUppsala, SE

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

NorahDerry, NI

#10

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

SunnivaBodø, NO

#11

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

TobySwindon, UK

#12

Gently disagreeing with the reply above, or rather adding the other half of it.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

HuwWrexham, UK

#13

Building on what the reply above wrote rather than answering the original question.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

GildaTrieste, IT

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10me too 8

RillaAberdeen, UK

#15

What the reply above described happened to me too, in a slightly different order.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

OrrinGlasgow, UK

#16

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

TorrinAberdeen, UK

#17

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

11me too 3

KikiFacilitatorGlasgow, UK

#18

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

AshSunderland, UK

#19

Building on what the reply above wrote rather than answering the original question.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.