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The plateau

When your family notices the plateau before you say anything

Started 19 December 2025 · 14 replies · 107 hearts · read 1.1k times

VeraRiga, LV · 19 December 2025
7 months ago

Starting a thread on this because it keeps coming up in ones and twos: When your family notices the plateau before you say anything

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

Thanks all. Genuinely.

36

NikolaiSofia, BG
#1

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

7

NoleneDurban, ZA
#2

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

6

LlianCarmarthen, UK
#3

What the opening post described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

6

AdaFacilitatorManchester, UK
#4

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

16me too 7

TasnimBradford, UK
#5

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8me too 3

PolaGdańsk, PL
#6

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

6

PerrineStrasbourg, FR
#7

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

5

BertrandToulouse, FR
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

I did exactly the same and felt terrible about it. You have not done anything wrong.

8

TamzinPoole, UK
#9

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

3

TamarPlymouth, UK
#10

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

AikoOsaka, JP
#11

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

10me too 4

AleksLjubljana, SI
#12

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6

AdaFacilitatorManchester, UK
#13

the reply above — yes, and the bit that took me longest to accept was the next part.

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

14

BarnabyWinchester, UK
#14

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

5