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The plateau

My clinician says wait and I am struggling to

Started 19 May 2026 · 15 replies · 86 hearts · read 943 times

PerrineStrasbourg, FR · 19 May 2026
2 months ago

Something I have been sitting with: My clinician says wait and I am struggling to Not looking for advice so much as other people's experience.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

29

IlseMaastricht, NL
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7

TinukeManchester, UK
#2

Please do not read the comments under news articles about this. I lost a fortnight to that.

3

AdaFacilitatorManchester, UK
#3

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

10

SableCape Town, ZA
#4

Gently disagreeing with the opening post, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

7

BrunoMilan, IT
#5

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

3

OsmanAnkara, TR
#6

Gently disagreeing with the reply above, or rather adding the other half of it.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

6

LeifTrondheim, NO
#7

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 4

TiborBratislava, SK
#8

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

5

PolaGdańsk, PL
#9

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

3me too 3

NadjaBelgrade, RS
#10

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

TiernanOmagh, NI
#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

5me too 7

IlyaAlmaty, KZ
#12

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

2

BibiRabat, MA
#13

the reply above said something I want to sit with for a second.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

AdaFacilitatorManchester, UK
#14

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

9

NoleneDurban, ZA
#15

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

5