Nobody in my life understood why I would stop

Started 4 July 2026 · 14 replies · 74 hearts · read 1.7k times

GabePhoenix, AZ · 4 July 2026

2 weeks ago

Something I have been sitting with: Nobody in my life understood why I would stop Not looking for advice so much as other people's experience.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Thanks all. Genuinely.

BastianFreiburg, DE

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

5me too 6

FabianBasel, CH

Please do not read the comments under news articles about this. I lost a fortnight to that.

DashSeattle, WA

Reading the opening post, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

BenediktFacilitatorVienna, Austria

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

NikoTbilisi, GE

Reading the reply above, I recognised more of that than I expected to.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

IdaRotterdam, NL

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

4me too 2

SinéadCork, IE

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

BronLincoln, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

BryonyMalvern, UK

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

TillyHereford, UK

#10

the reply above — yes, and the bit that took me longest to accept was the next part.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

FenEly, UK

#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

BramwellRipon, UK

#12

Building on what the reply above wrote rather than answering the original question.

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

5me too 7

BenediktFacilitatorVienna, Austria

#13

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

Birdie BWhitstable, UK

#14

No advice, just recognition. That sounds exhausting and I am sorry you are in it.