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Coming off

I regret stopping and I am not sure what to do with that

Started 7 December 2025 · 14 replies · 117 hearts · read 2.5k times

Birdie BWhitstable, UK · 7 December 2025
7 months ago

Something I have been sitting with: I regret stopping and I am not sure what to do with that Not looking for advice so much as other people's experience.

Writing this partly to ask and partly because writing it down usually tells me what I think.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Thanks all. Genuinely.

39

TressaSt Austell, UK
#1

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6me too 1

NikoTbilisi, GE
#2

I did exactly the same and felt terrible about it. You have not done anything wrong.

4

BenediktFacilitatorVienna, Austria
#3

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

16

DashSeattle, WA
#4

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

9

TedIpswich, UK
#5

What helped was lowering my own expectations of the week rather than trying to hold the week together.

8

DelythBala, UK
#6

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

SinéadCork, IE
#7

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

BramwellRipon, UK
#8

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

8

GabePhoenix, AZ
#9

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

5

BronLincoln, UK
#10

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

8

FenEly, UK
#11

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

9

FabianBasel, CH
#12

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

5

BenediktFacilitatorVienna, Austria
#13

Gently disagreeing with the reply above, or rather adding the other half of it.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

18

TillyHereford, UK
#14

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

6me too 3