A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Coming off

What helped in the three months after

Started 4 January 2026 · 18 replies · 123 hearts · read 2.2k times

NikoTbilisi, GE · 4 January 2026
6 months ago

What helped in the three months after — putting it in its own thread so it does not get lost in the check-in.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

The thing that has surprised me most is how much of this is about other people rather than about me.

Sorry for the length. If anyone has been here, I would very much like to hear it.

41

TanviMumbai, IN
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

7

DelythBala, UK
#2

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

6

BenediktFacilitatorVienna, Austria
#3

Building on what the opening post wrote rather than answering the original question.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

14

GabePhoenix, AZ
#4

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

4

TedIpswich, UK
#5

Building on what the reply above wrote rather than answering the original question.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

GudrunAkureyri, IS
#6

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

SinéadCork, IE
#7

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

5me too 9

TressaSt Austell, UK
#8

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

FabianBasel, CH
#9

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

6

DashSeattle, WA
#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

IdaRotterdam, NL
#11

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

FenEly, UK
#12

Reading the reply above, I recognised more of that than I expected to.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

7me too 5

Birdie BWhitstable, UK
#13

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

4

BryonyMalvern, UK
#14

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

6

BramwellRipon, UK
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8me too 1

BastianFreiburg, DE
#16

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

7

BenediktFacilitatorVienna, Austria
#17

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

8

NikoTbilisi, GE
#18

What the reply above described happened to me too, in a slightly different order.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5