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Coming off

Six months off and where my appetite is

Started 9 February 2026 · 12 replies · 94 hearts · read 906 times

TedIpswich, UK · 9 February 2026
5 months ago

Six months off and where my appetite is Writing it down partly to work out what I actually think.

I do not know if this belongs in this circle. Move me if not.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

31

DashSeattle, WA
#1

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

BramwellRipon, UK
#2

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

8me too 1

BenediktFacilitatorVienna, Austria
#3

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

9

Birdie BWhitstable, UK
#4

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

7

NikoTbilisi, GE
#5

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

8me too 6

GabePhoenix, AZ
#6

Reading the reply above, I recognised more of that than I expected to.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

5

BryonyMalvern, UK
#7

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9

BronLincoln, UK
#8

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6

TillyHereford, UK
#9

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7

SinéadCork, IE
#10

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

5

BenediktFacilitatorVienna, Austria
#11

What the reply above described happened to me too, in a slightly different order.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

13

IdaRotterdam, NL
#12

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

7