A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Coming off

I stopped for surgery and it was fine

Started 1 December 2025 · 14 replies · 119 hearts · read 1.5k times

GabePhoenix, AZ · 1 December 2025
8 months ago

Starting a thread on this because it keeps coming up in ones and twos: I stopped for surgery and it was fine

Writing this partly to ask and partly because writing it down usually tells me what I think.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Sorry for the length. If anyone has been here, I would very much like to hear it.

40

BronLincoln, UK
#1

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

7me too 8

BenediktFacilitatorVienna, Austria
#2

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

17

SinéadCork, IE
#3

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

4

NikoTbilisi, GE
#4

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

7

DelythBala, UK
#5

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

11

TillyHereford, UK
#6

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

5

FabianBasel, CH
#7

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

9

Birdie BWhitstable, UK
#8

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

DashSeattle, WA
#9

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6

TanviMumbai, IN
#10

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8

FenEly, UK
#11

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

BastianFreiburg, DE
#12

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6

BenediktFacilitatorVienna, Austria
#13

the reply above said something I want to sit with for a second.

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

17

TedIpswich, UK
#14

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

4me too 2