A year off and mostly steady

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

I did exactly the same and felt terrible about it. You have not done anything wrong.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

Reading the reply above, I recognised more of that than I expected to.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

Gently disagreeing with the reply above, or rather adding the other half of it.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

Yes to the burping. It is real, it is unbeautiful, and it does settle.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

the reply above said something I want to sit with for a second.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.