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Coming off

Cost made the decision for me

Started 9 January 2025 · 17 replies · 200 hearts · read 1.8k times

TanviMumbai, IN · 9 January 2025
1.5 years ago

Starting a thread on this because it keeps coming up in ones and twos: Cost made the decision for me

I do not know if this belongs in this circle. Move me if not.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

67

IdaRotterdam, NL
#1

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

12

DelythBala, UK
#2

What the opening post described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

14me too 3

NikoTbilisi, GE
#3

Gently disagreeing with the reply above, or rather adding the other half of it.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

BenediktFacilitatorVienna, Austria
#4

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

29

GudrunAkureyri, IS
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10

FenEly, UK
#6

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

6

GabePhoenix, AZ
#7

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9

FabianBasel, CH
#8

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

8

DashSeattle, WA
#9

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

7

TressaSt Austell, UK
#10

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

13

Birdie BWhitstable, UK
#11

Reading the reply above, I recognised more of that than I expected to.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

13

TedIpswich, UK
#12

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

11me too 7

TillyHereford, UK
#13

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12

BramwellRipon, UK
#14

the reply above said something I want to sit with for a second.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

BryonyMalvern, UK
#15

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

8

BenediktFacilitatorVienna, Austria
#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things, both boring. First, none of us can tell you what to take. Second, the conversation you want to have is with your prescriber, and we can help you write it down.

24

BastianFreiburg, DE
#17

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

6