A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Coming off

The first time hunger came back properly

Started 3 January 2025 · 24 replies · 265 hearts · read 2k times

TillyHereford, UK · 3 January 2025
1.5 years ago

Something I have been sitting with: The first time hunger came back properly Not looking for advice so much as other people's experience.

Long one, sorry. I have been chewing on this for a fortnight.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

What I keep tripping on is not the physical bit. It is the not knowing whether what I am experiencing is normal, and having nobody to ask who is not either selling something or frightened for me.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

88

BastianFreiburg, DE
#1

What helped was lowering my own expectations of the week rather than trying to hold the week together.

15

BenediktFacilitatorVienna, Austria
#2

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

19me too 5

BryonyMalvern, UK
#3

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

14

TressaSt Austell, UK
#4

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12

TedIpswich, UK
#5

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

10me too 9

BronLincoln, UK
#6

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

FabianBasel, CH
#7

Building on what the reply above wrote rather than answering the original question.

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

6

DashSeattle, WA
#8

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

12

DelythBala, UK
#9

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

8

FenEly, UK
#10

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

14

Birdie BWhitstable, UK
#11

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8

TanviMumbai, IN
#12

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

BramwellRipon, UK
#13

Please do not read the comments under news articles about this. I lost a fortnight to that.

6

NikoTbilisi, GE
#14

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

9

SinéadCork, IE
#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

9

GudrunAkureyri, IS
#16

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11

IdaRotterdam, NL
#17

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

10me too 8

TillyHereford, UK
#18

What the reply above described happened to me too, in a slightly different order.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

13

BastianFreiburg, DE
#19

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

10

GabePhoenix, AZ
#20

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

11

BryonyMalvern, UK
#21

What the reply above described happened to me too, in a slightly different order.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

9

TressaSt Austell, UK
#22

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

13

BenediktFacilitatorVienna, Austria
#23

Noticing out loud that this conversation has drifted into comparison. That happens without anyone intending it and it does not help anyone. Let us come back to the person who asked.

15

BronLincoln, UK
#24

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

12