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When the noise goes quiet

The first fortnight of quiet was disorienting rather than nice

Started 17 May 2025 · 18 replies · 167 hearts · read 3.3k times

BronteHaworth, UK · 17 May 2025
about a year ago

Something I have been sitting with: The first fortnight of quiet was disorienting rather than nice Not looking for advice so much as other people's experience.

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

The thing that has surprised me most is how much of this is about other people rather than about me.

Thanks all. Genuinely.

56

MaritGroningen, NL
#1

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

JonahFacilitatorCork, Ireland
#2

Building on what the opening post wrote rather than answering the original question.

Before anyone offers a remedy: what has been described here is on the list of things that need a clinician today rather than a thread. I am going to be firm about that, kindly.

13

MaryamBirmingham, UK
#3

the reply above said something I want to sit with for a second.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

12

MaeveSligo, IE
#4

What helped was lowering my own expectations of the week rather than trying to hold the week together.

9

TavishIsle of Skye, UK
#5

the reply above said something I want to sit with for a second.

Please do not read the comments under news articles about this. I lost a fortnight to that.

11

PoppyLeeds, UK
#6

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

LuPreston, UK
#7

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

8me too 3

RinManchester, UK
#8

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

9

BeaDublin, IE
#9

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

7me too 8

CloverTotnes, UK
#10

Yes to the burping. It is real, it is unbeautiful, and it does settle.

9

BrammyBelfast, NI
#11

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

7

OdileMontreal, CA
#12

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

10

BramGhent, BE
#13

Reading the reply above, I recognised more of that than I expected to.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

5

Ozzy GWalsall, UK
#14

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9me too 8

BodhiByron Bay, AU
#15

What the reply above described happened to me too, in a slightly different order.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

7

PosyChichester, UK
#16

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

6

JonahFacilitatorCork, Ireland
#17

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

17me too 3

TildaCambridge, UK
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9