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How often do you actually see your prescriber now

Started 6 July 2025 · 20 replies · 184 hearts · read 1.8k times

OttilieCheshire, UK · 6 July 2025
about a year ago

Something I have been sitting with: How often do you actually see your prescriber now Not looking for advice so much as other people's experience.

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

I will report back either way, because I have been helped by other people's follow-ups more than by their questions.

61

MarenBremen, DE
#1

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

5me too 1

YannickBrussels, BE
#2

What the opening post described happened to me too, in a slightly different order.

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

9

TamsinRedruth, UK
#3

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

6

BenediktFacilitatorVienna, Austria
#4

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

16

OllyReading, UK
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9

AikoOsaka, JP
#6

Yes to the burping. It is real, it is unbeautiful, and it does settle.

10

MargueriteQuebec City, CA
#7

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

6

FenellaCirencester, UK
#8

Reading the reply above, I recognised more of that than I expected to.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

DashSeattle, WA
#9

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

9

SalmaManchester, UK
#10

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

10

StefanZurich, CH
#11

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

7

NellFrome, UK
#12

the reply above said something I want to sit with for a second.

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

11

HettyCambridge, UK
#13

Reading the reply above, I recognised more of that than I expected to.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

6

BevanSwansea, UK
#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9me too 6

Ozzy GWalsall, UK
#15

Building on what the reply above wrote rather than answering the original question.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

TressaSt Austell, UK
#16

Please do not read the comments under news articles about this. I lost a fortnight to that.

11

WilfStoke, UK
#17

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

9me too 1

GigiNaples, IT
#18

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

8

BenediktFacilitatorVienna, Austria
#19

Reading the reply above, I recognised more of that than I expected to.

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

19

BoWhitby, UK
#20

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

7me too 9