A peer support community, independent and not for sale. Since February 2024.

GLP CircleA peer support community

Neurodivergent members

Batch cooking and freezer labels as a survival strategy

Started 5 May 2025 · 19 replies · 219 hearts · read 3.2k times

Bryn MNeath, UK · 5 May 2025
about a year ago

A question rather than an update: Batch cooking and freezer labels as a survival strategy

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

Here is where I am. The medication side has been more or less as described, and the part nobody prepared me for is everything around it: what to say to people, how to plan a week, and how to tell the difference between a thing to endure and a thing to raise.

Thanks all. Genuinely.

73

TacitaRome, IT
#1

I did exactly the same and felt terrible about it. You have not done anything wrong.

10

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

12

AnnikaStockholm, SE
#3

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

12

GwilymCaernarfon, UK
#4

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8

EsmeAix-en-Provence, FR
#5

Gently disagreeing with the reply above, or rather adding the other half of it.

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

10

LeifTrondheim, NO
#6

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

12me too 4

ObieNashville, TN
#7

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8

NixLeith, UK
#8

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

15

WilfStoke, UK
#9

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

14me too 2

TarqWindsor, UK
#10

What the reply above described happened to me too, in a slightly different order.

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

10

SoniaValencia, ES
#11

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

10

Bryn MNeath, UK
#12

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

9

TacitaRome, IT
#13

Building on what the reply above wrote rather than answering the original question.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

8me too 3

TobiasHamburg, DE
#14

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

12

AnnikaStockholm, SE
#15

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

12

GwilymCaernarfon, UK
#16

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

10

EsmeAix-en-Provence, FR
#17

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

14

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

21me too 8

ObieNashville, TN
#19

Reading the reply above, I recognised more of that than I expected to.

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

12