Fatigue that lifted at week ten like a curtain

Started 1 July 2024 · 24 replies · 289 hearts · read 2.5k times

MarenBremen, DE · 1 July 2024

2.1 years ago

A question rather than an update: Fatigue that lifted at week ten like a curtain

Squeamish subject, so I am going to be plain about it and get it over with.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

Anyway. Thank you for reading this far. Any experience gratefully received, and I promise to come back and say what happened.

RunaAarhus, DK

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

NettieBarrow, UK

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

13me too 9

SinéadCork, IE

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

KikiFacilitatorGlasgow, UK

What the reply above described happened to me too, in a slightly different order.

I will leave this open for a few more days and then add it to the circle's resources, because the answers here are better than anything I would have written.

RufusGuildford, UK

I did exactly the same and felt terrible about it. You have not done anything wrong.

12me too 6

Ollie OPeterhead, UK

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

HuwWrexham, UK

the reply above — yes, and the bit that took me longest to accept was the next part.

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

OssianTromsø, NO

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.

TorrinAberdeen, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

PeggyRotherham, UK

#10

What the reply above described happened to me too, in a slightly different order.

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

RuthieLeicester, UK

#11

What the reply above described happened to me too, in a slightly different order.

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

NilsUppsala, SE

#12

Coming back to this a fortnight later to say it settled. Leaving the update because I hate reading threads that stop.

BassCoventry, UK

#13

What helped was lowering my own expectations of the week rather than trying to hold the week together.

HollisBath, UK

#14

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

LeifTrondheim, NO

#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

GildaTrieste, IT

#16

Please do not read the comments under news articles about this. I lost a fortnight to that.

16me too 4

KezWigan, UK

#17

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

NkemPort Harcourt, NG

#18

the reply above said something I want to sit with for a second.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

GigiNaples, IT

#19

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

OrrinGlasgow, UK

#20

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

NikolaiSofia, BG

#21

the reply above said something I want to sit with for a second.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

NorahDerry, NI

#22

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

KikiFacilitatorGlasgow, UK

#23

I want to slow this down a little. There are four different answers flying about and they are all somebody's real experience, which makes them true and not necessarily relevant to the person who asked.

16me too 9

TychoLeiden, NL

#24

Reading the reply above, I recognised more of that than I expected to.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.