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The plateau

I am on maintenance and I did not choose it

Started 28 November 2024 · 22 replies · 232 hearts · read 2.4k times

IlyaAlmaty, KZ · 28 November 2024
1.6 years ago

A question rather than an update: I am on maintenance and I did not choose it

I have been reading here for a few weeks and have not posted, so this is me posting.

I have written down what has actually happened, in order, because I find that more useful than my summary of it.

What I would find most useful is not advice. It is somebody describing what their version of this was, and how long it went on for.

Sorry for the length. If anyone has been here, I would very much like to hear it.

77

NadirCasablanca, MA
#1

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11me too 4

AdaFacilitatorManchester, UK
#2

What the opening post described happened to me too, in a slightly different order.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

15

Birdie BWhitstable, UK
#3

Please do not read the comments under news articles about this. I lost a fortnight to that.

10

EspeSeville, ES
#4

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

8

CatoAntwerp, BE
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

8

BertrandToulouse, FR
#6

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

11

NkechiAbuja, NG
#7

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

13

NikitaYerevan, AM
#8

Reading the reply above, I recognised more of that than I expected to.

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

BramSheffield, UK
#9

I did exactly the same and felt terrible about it. You have not done anything wrong.

9

LulaBournemouth, UK
#10

Practical, boring answer: write the three questions down before you go in. I have never once remembered them otherwise.

11

BrunoMilan, IT
#11

Building on what the reply above wrote rather than answering the original question.

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

NikoTbilisi, GE
#12

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

9

NoleneDurban, ZA
#13

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

12

OssieWolverhampton, UK
#14

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

10me too 9

AikoOsaka, JP
#15

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

8

OttilieCheshire, UK
#16

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

12

PetuaKampala, UG
#17

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

9me too 4

TorKeswick, UK
#18

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11

TinukeManchester, UK
#19

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

9

PerduMontpellier, FR
#20

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

9me too 3

AdaFacilitatorManchester, UK
#21

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

22me too 1

SableCape Town, ZA
#22

Yes to the burping. It is real, it is unbeautiful, and it does settle.

6