Does a plateau mean the dose is wrong

Started 25 November 2024 · 24 replies · 255 hearts · read 5k times

BodhiByron Bay, AU · 25 November 2024

1.6 years ago

Does a plateau mean the dose is wrong Writing it down partly to work out what I actually think.

Long one, sorry. I have been chewing on this for a fortnight.

My prescriber has been fine, genuinely. The problem is that I get nine minutes twice a year and there is no version of nine minutes that covers this.

The thing that has surprised me most is how much of this is about other people rather than about me.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Not looking for a plan. Just company and whatever anyone has found.

ShadeIbadan, NG

I would take that to a clinician rather than to us, and I would do it this week. Not because it is definitely serious — because it is the sort of thing that is much easier to rule out than to worry about.

AdaFacilitatorManchester, UK

Thank you for writing this. I am not going to add information to it. I am going to say that what you have described is very common and very rarely said out loud.

BrackAlnwick, UK

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

NolCork, IE

the opening post — yes, and the bit that took me longest to accept was the next part.

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

OsmanAnkara, TR

I keep a two-line diary and it is the only reason I could answer this question about myself. Worth starting even now.

OzrenZagreb, HR

the reply above — yes, and the bit that took me longest to accept was the next part.

No advice, just recognition. That sounds exhausting and I am sorry you are in it.

BronLincoln, UK

The phrase that unlocked my appointment was asking what specifically she wanted me to watch for. It moved us from reassurance to a plan in about thirty seconds.

10me too 4

NedChesterfield, UK

Different experience here, for balance. Mine did not improve and in the end I stopped, and that was the right call for me. Both outcomes exist.

ÖzlemIzmir, TR

What helped was lowering my own expectations of the week rather than trying to hold the week together.

NolwennRennes, FR

#10

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

GwythFishguard, UK

#11

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

LinneaTurku, FI

#12

Reading the reply above, I recognised more of that than I expected to.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

11me too 7

BarnabyWinchester, UK

#13

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

GudrunAkureyri, IS

#14

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

TiernanOmagh, NI

#15

the reply above — yes, and the bit that took me longest to accept was the next part.

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11me too 3

PerlaManila, PH

#16

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

TamarPlymouth, UK

#17

Please do not read the comments under news articles about this. I lost a fortnight to that.

OttilieCheshire, UK

#18

What the reply above described happened to me too, in a slightly different order.

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

BramwellRipon, UK

#19

Yes to the burping. It is real, it is unbeautiful, and it does settle.

DashSeattle, WA

#20

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

TaaviTallinn, EE

#21

Building on what the reply above wrote rather than answering the original question.

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

OrphBath, UK

#22

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

8me too 4

AdaFacilitatorManchester, UK

#23

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

TobinCork, IE

#24

The thing that changed it for me was going slower, agreed with my prescriber. I am not suggesting you do that. I am saying the conversation exists.