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When the noise goes quiet

I did not know other people did not have this

Started 7 March 2025 · 19 replies · 198 hearts · read 2k times

RinManchester, UK · 7 March 2025
1.4 years ago

I did not know other people did not have this Writing it down partly to work out what I actually think.

Not asking anyone to fix this. Mostly saying it out loud somewhere it will be read kindly.

I am aware some of this may be nothing. I would still like to know whether other people have had it, because I have spent a fortnight assuming I am the only one.

I have read the guides here, which were more useful than anything else I have found, and I still have a question they do not cover.

Not looking for a plan. Just company and whatever anyone has found.

66

SalmaManchester, UK
#1

It got worse before it got better for me, which I wish someone had said. About ten days of worse.

7

BodhiByron Bay, AU
#2

For what it is worth, the trial data on this is thinner than the confidence of the internet would suggest. Worth knowing when you read the posts.

9me too 2

BronteHaworth, UK
#3

Have you got anyone who can be with you when you do it? It made an enormous difference to me and I felt silly asking.

9

JonahFacilitatorCork, Ireland
#4

Reading the reply above, I recognised more of that than I expected to.

If any of this has landed close to home for you while reading, our support resources page lists the kinds of services worth finding. No obligation and no drama.

22

MaryamBirmingham, UK
#5

the reply above — yes, and the bit that took me longest to accept was the next part.

Can I gently push back on one thing? Not the substance, just the framing — you have written twice that you should be coping better. Who told you that?

7me too 7

LuPreston, UK
#6

My pharmacist was more use than anyone. Ten minutes at the counter, no appointment, no charge.

8

BrammyBelfast, NI
#7

I am about four months behind you and I have been dreading exactly this, so thank you for writing it down before I got there.

5

MattNottingham, UK
#8

Yes to the burping. It is real, it is unbeautiful, and it does settle.

12

MapleToronto, CA
#9

the reply above — yes, and the bit that took me longest to accept was the next part.

My experience was very boring, which I offer as data. Some of us just get a dull time of it.

14

Ozzy GWalsall, UK
#10

What helped was lowering my own expectations of the week rather than trying to hold the week together.

10

CloverTotnes, UK
#11

Mine lasted about seven weeks and then lifted over a few days. I cannot tell you why. I can tell you it lifted.

9

BronwenBarry, UK
#12

Yes. All of this. I had the same in my third month and I remember thinking there was something specifically wrong with me, which there was not.

8

IzzyWatford, UK
#13

Reading the reply above, I recognised more of that than I expected to.

I have been in this circle a year and this question comes round every few months. It is not a silly question. It is the question.

7me too 7

OdileMontreal, CA
#14

Similar here, and mine turned out to be a completely unrelated deficiency picked up on bloods.

11

NualaArmagh, NI
#15

I asked my nurse the same question and she said something I have repeated ever since: that the aim is to keep you on treatment, not to get you up the schedule.

14

NadiaCairo, EG
#16

Gently disagreeing with the reply above, or rather adding the other half of it.

Please do not read the comments under news articles about this. I lost a fortnight to that.

7

TansyLudlow, UK
#17

Two things that helped me, neither of them clever: small amounts more often, and drinking a lot more than felt necessary.

12

JonahFacilitatorCork, Ireland
#18

Gently: you have apologised three times in a post where you have done nothing that requires an apology.

19me too 3

AmmiKarachi, PK
#19

I am the person who had the frightening version of this. I went in, it was investigated, and it was not what anyone feared. Going in is the whole of my advice.

8me too 6