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Journal

Tilda’s journal

Trying things and reporting back.

46 entries from 22 Oct 2024 to 18 Jun 2026 · Cambridge, UK

  • Circle tonight

    Friday 11 Jul 2025week 38warm energy 54 replies

    Went for the practical answers and stayed for the company, which I gather is what everybody does. The facilitator stopped the room when four of us were talking at once and…

  • Nothing to report

    Tuesday 1 Jul 2025week 37fine energy 41 reply

    Week in order: No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. Nothing to report.…

  • She reduced it

    Saturday 21 Jun 2025week 35frustrated energy 42 replies

    Left with a printout I could not read and no idea what to be worried about. Taking it to bloodwork-buddies on Thursday. Took the diary in. She read it properly, which I had…

  • No mask

    Thursday 12 Jun 2025week 34tired energy 34 replies

    Week in order: Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off. Two other…

  • Paired

    Sunday 1 Jun 2025week 32held energy 24 replies

    Three things this week. Paired up. We text on Sunday nights, four or five lines each, and it has quietly become the most reliable thing in my week. My buddy noticed something…

  • Not writing about this would be dishonest

    Monday 19 May 2025week 30sore energy 32 replies

    Week in order: Cramp in both calves in the night, twice this week. Mentioned it and had bloods done rather than being told to eat a banana, which I appreciated. The nausea…

  • Unpleasant, not dangerous

    Monday 12 May 2025week 29sore energy 43 replies

    Week in order: Cramp in both calves in the night, twice this week. Mentioned it and had bloods done rather than being told to eat a banana, which I appreciated. Nausea,…

  • Back without making it up

    Tuesday 6 May 2025week 29tired but good energy 32 replies

    Three things this week. Came back after a bad fortnight without trying to make up the lost ground, which is the thing that used to end it for me every time. Walked instead of…

  • Across the day

    Thursday 24 Apr 2025week 27steady energy 33 replies

    Three things this week. Spread it across the day instead of trying to do it all at teatime and everything got easier. I have found five things I can get down when nothing…

  • Quiet

    Friday 11 Apr 2025week 25flat energy 33 replies

    Three things this week. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing.…

  • Eight minutes and a chair

    Monday 31 Mar 2025week 23tired but good energy 3

    Walked instead of the bus all week. Not a programme. Just walking. Two sessions this week, both short, both done. Ren keeps saying that two a week for two years beats a…

  • She noticed first

    Thursday 20 Mar 2025week 22held energy 24 replies

    She had a bad week and I had a fine one, and next month it will be the other way round. That is the whole mechanism. Paired up. We text on Sunday nights, four or five lines…

  • What is your secret

    Sunday 9 Mar 2025week 20loved energy 21 reply

    Week in order: My mother cooks. That is how she says it. So I eat what I can, slowly, and I say thank you, and we manage. It is not a problem to be solved. Sunday lunch at my…

  • I nearly did not write

    Wednesday 26 Feb 2025week 19steady energy 33 replies

    No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. Nothing to report. Writing it down…

  • Two flights of stairs

    Saturday 15 Feb 2025week 17quietly delighted energy 11 reply

    Sat on the floor and played for an hour, and then got up. That was the entire reason I started, and I have now done it. Carried both bags up in one go. Small thing. Wrote it…

  • A different shape

    Wednesday 5 Feb 2025week 16tired energy 24 replies

    Three things this week. Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off.…

  • Protein first

    Thursday 23 Jan 2025week 14steady energy 33 replies

    Three things this week. I have found five things I can get down when nothing appeals and I have written them on the fridge. That list is the most useful thing I own. Spread…

  • Before nine

    Thursday 16 Jan 2025week 13steady energy 43 replies

    Spread it across the day instead of trying to do it all at teatime and everything got easier. Tested six protein sources for tolerability and published a table. I have found…

  • Nothing to report

    Sunday 12 Jan 2025week 12fine energy 33 replies

    Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. No news. The dog is…

  • Quiet

    Wednesday 1 Jan 2025week 11fine energy 53 replies

    Week in order: No news. The dog is well, the weather has been foul, and I have taken my medication on the correct day for the eleventh week running. Nothing to report.…