Journal
Aleks’s journal
Small country, small supply, big determination.
The shame was the worst of it
week 35relieved energy 31 reply
Short one tonight. Starting from the bottom again, which my prescriber was firm about and which I am now grateful for. Restarted after the gap and the side effects came back…
A different shape
week 33rested energy 54 replies
Late, and writing anyway. Repeat study came back and the apnoea is much reduced. Ten years of that mask. Slept through. Whole night, no waking. It has been so long that I lay…
Steady
week 32fine energy 51 reply
Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. Nothing to report. Writing it down anyway, on the theory that a journal made only of…
The list on the fridge
week 30steady energy 53 replies
Late, and writing anyway. Spread it across the day instead of trying to do it all at teatime and everything got easier. I have found five things I can get down when nothing…
A calculator and a cup of tea
week 29pinched energy 24 replies
Price went up mid-year and I had a very unglamorous evening with a calculator and a cup of tea. A supply gap of five weeks. Did the arithmetic out loud, on the page, no…
She read the diary
week 29frustrated energy 22 replies
Late, and writing anyway. Asked the question I had been avoiding for eleven years. She answered it in about ninety seconds and was completely unbothered. A locum who had…
The limits of yoghurt
week 27steady energy 43 replies
A quiet week. I have found five things I can get down when nothing appeals and I have written them on the fridge. That list is the most useful thing I own. Spread it across…
A new bin and a plan
week 26organised energy 42 replies
New sharps bin, and a plan for what happens to it when I move in September. Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice…
Walking
week 24tired but good energy 42 replies
Late, and writing anyway. Walked instead of the bus all week. Not a programme. Just walking. Kept the two sessions that matter and dropped the two that were vanity. Fewer,…
I nearly did not write
week 23flat energy 43 replies
A quiet week. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly…
Starters as a main
week 22warm energy 41 reply
Short one tonight. A wedding. Three courses I could not face, a table of people who noticed, and a very kind waiter who boxed it up without saying a word. My mother cooks.…
Protein first
week 20steady energy 13 replies
Short one tonight. Spread it across the day instead of trying to do it all at teatime and everything got easier. I have found five things I can get down when nothing appeals…
Two lines a day
week 19organised energy 32 replies
Short one tonight. Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice changed a clinical decision. Anchored injection day to my…
No news
week 17fine energy 43 replies
Short one tonight. I nearly did not write this week because there was nothing in it. Then I thought about how much I have got out of other people's boring weeks. Quiet.…
Unpleasant, not dangerous
week 15rough energy 41 reply
A quiet week. The burping. Nobody mentions the burping. It is not in any leaflet and it is genuinely one of the odder experiences of my adult life. Cramp in both calves in…
Propped up on pillows
week 14rough energy 24 replies
The burping. Nobody mentions the burping. It is not in any leaflet and it is genuinely one of the odder experiences of my adult life. Mild. Cramp in both calves in the night,…
Anchored to the shifts
week 14organised energy 32 replies
Late, and writing anyway. Anchored injection day to my shift pattern rather than to the calendar, which solved a problem I had been feeling guilty about for four months.…
Quiet
week 13flat energy 31 reply
Short one tonight. Quiet. Injection Tuesday, mild Wednesday, fine by Thursday, and then a normal weekend. Nothing to report. Writing it down anyway, on the theory that a…
An hour on the floor
week 11pleased energy 11 reply
Short one tonight. Tied my own laces standing up. I am aware of how that sounds and I do not care. Walked into town and back, which I stopped doing years ago without ever…
An unremarkable week
week 9flat energy 13 replies
Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. I nearly did not write…