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Journals

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6.7k entries from 153 people. Page 264 of 279.

  • No mask

    Hannah5 Aug 2024tired energy 3

    Slept through. Whole night, no waking. It has been so long that I lay there in the morning trying to work out what was different. Repeat study came back and the…

  • Flat, whole night

    Ottoline5 Aug 2024pleased energy 5

    Full shift on my feet and my knees did not stop me. That has not happened in about four years. Sat on the floor and played for an hour, and then got up. That was the…

  • Two sessions

    Priya5 Aug 2024tired but good energy 5

    Came back after a bad fortnight without trying to make up the lost ground, which is the thing that used to end it for me every time. Walked instead of the bus all…

  • Back without making it up

    Salma5 Aug 2024tired but good energy 2

    Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Walked instead of the bus all week. Not a…

  • Propped up on pillows

    Tam5 Aug 2024flat energy 4turning point

    Reflux again. I slept propped up on three pillows and woke at two anyway. I have an appointment on Thursday and I am going to actually mention it this time rather…

  • She read the diary

    Lena4 Aug 2024heard energy 1

    Left with a printout I could not read and no idea what to be worried about. Taking it to bloodwork-buddies on Thursday. Took the diary in. She read it properly, which…

  • Before nine

    Dora4 Aug 2024steady energy 1

    Protein first, everything else after. It is not interesting advice and it is the only advice that has changed anything. Was undereating without realising. The nurse…

  • Anchored to the shifts

    Gavin4 Aug 2024organised energy 2

    Late, and writing anyway. New sharps bin, and a plan for what happens to it when I move in September. Two lines a day in a paper diary. Date, and one thing. That is…

  • A plain question

    Hedda4 Aug 2024steady energy 3

    Recording this for the record. Was undereating without realising. The nurse asked a plain question about what I had actually eaten in the last two days and I heard my…

  • Steady

    Wilf4 Aug 2024flat energy 3

    An unremarkable week. Ate, walked, worked, slept adequately. This is what most of it looks like. Nothing to report. Writing it down anyway, on the theory that a…

  • Paired

    Mina3 Aug 2024held energy 5

    Late, and writing anyway. Paired up. We text on Sunday nights, four or five lines each, and it has quietly become the most reliable thing in my week. She had a bad…

  • Six labelled boxes

    Poppy3 Aug 2024pleased energy 2

    Ten minutes then I am asleep. Two lines a day in a paper diary. Date, and one thing. That is the entire system and it has twice changed a clinical decision. Anchored…

  • How are you doing on a Wednesday

    Ambrose3 Aug 2024held energy 4

    Nobody has ever asked me how I was doing on a Wednesday before. Paired up. We text on Sunday nights, four or five lines each, and it has quietly become the most…

  • Standing in the kitchen

    Marnie3 Aug 2024hopeful energy 5

    Late, and writing anyway. What I keep coming back to is how long it took me to get here. Not the medication — the asking. Years of that. The pharmacist talked me…

  • Awake at four

    Maryam3 Aug 2024foggy energy 5

    Recording this for the record. Waking at four again. Not anxious, just awake, lying there listening to the boiler. Vivid dreams, every night, the sort you have to sit…

  • Awake at four

    Peggy3 Aug 2024rested energy 3

    This week: The sleep has changed shape rather than improved. Different, not better, and I cannot yet tell whether I mind. Slept through. Whole night, no waking. It…

  • An hour on the floor

    Sam3 Aug 2024quietly delighted energy 4

    Walked into town and back, which I stopped doing years ago without ever deciding to stop. Full shift on my feet and my knees did not stop me. That has not happened in…

  • The first one

    Gigi2 Aug 2024hopeful energy 4

    Evening. The leaflet is nine pages and about seven of them are worst cases. I have read it three times, which was three times too many, and I am now going to stop…

  • Slept through

    Posy2 Aug 2024tired energy 3

    This week: Repeat study came back and the apnoea is much reduced. Ten years of that mask. Vivid dreams, every night, the sort you have to sit up and shake off. Two…

  • Quiet

    Birdie1 Aug 2024flat energy 3

    Evening. Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. An…

  • Thirteen hours

    Duncan1 Aug 2024organised energy 2

    Cool bag, thermometer, thirteen hours. It held at the right temperature the whole way and I have written down exactly which bag and exactly how much ice. Time…

  • Two sessions

    Gwen1 Aug 2024tired but good energy 5

    This week: Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Came back after a bad fortnight…

  • Quiet

    Kez1 Aug 2024steady energy 4

    Nothing to report. Writing it down anyway, on the theory that a journal made only of eventful weeks would give a false impression of the whole thing. Steady. That is…

  • Back without making it up

    Brody31 Jul 2024tired but good energy 1

    This week: Grip strength has gone off and I noticed it opening a jar before I noticed it anywhere else. Back to loading properly. Walked instead of the bus all week.…